Unusual. Uncommon. Infrequent. What else comes to mind when you hear the word, “rare?” It’s used so often that we can easily forget the significance of something that is scarce or atypical. Today, February 28, 2019, is Rare Disease Day. Although the day itself is infrequent, more people manage rare diseases than you might think. From Hemophilia A and B, Juvenile Idiopathic Arthritis, and Acute. Read more
hemophilia
As a human factors research firm, we understand the importance of gaining insights from real-world users such as patients, caregivers, and healthcare professionals. Who better to speak to the challenges of managing life altering conditions, than those who live with the reality of the condition’s impact day to day? Read more
Larry and Ziggy are back to celebrate World Hemophilia Day! At Design Science, we believe it’s important to share knowledge – especially the first-hand knowledge of peoples’ experience with bleeding disorders. So this new episode of the Larry & Ziggy Show features our correspondent, A’Brianna, chatting with people who have hemophilia at a meeting of the National Hemophilia Foundation. Check out. Read more
By attending advocacy events, we learned that people affected by rare diseases are passionate about making a difference in their communities. In reality, they are not often given the opportunity to communicate their experiences with the companies that create the medical devices and medications they use on a daily basis. For over 20 years, we have supported the efforts of medical product. Read more
In April, Design Science participated in the 3rd Annual Big Red Run at Ridley Creek State Park in Media, PA. The 5K event helped raise money for the Brandywine Valley Hemophilia Foundation, which uses the money to fund research towards better treatments and progression towards a cure. Nine of Design Science’s employees (Carrie Davidson, Zaheer Elly, Megan Findlay, Jennifer Galindo, Neil Mejia,. Read more