rare disease

Artwork and Activism: DS Welcomes Rare Disease Activist Max Schill

Did you know that there are over 7,000 rare diseases in the world and 95% of them don’t have treatments? That’s why ten-year-old activist Max Schill is fighting to make sure all patients get the care they need. When he’s not in school or advocating for bills in Congress, Max has another way to help the community: through art. Read more

Rare Disease Day 2019

Unusual. Uncommon. Infrequent. What else comes to mind when you hear the word, “rare?” It’s used so often that we can easily forget the significance of something that is scarce or atypical. Today, February 28, 2019, is Rare Disease Day. Although the day itself is infrequent, more people manage rare diseases than you might think. From Hemophilia A and B, Juvenile Idiopathic Arthritis, and Acute. Read more

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